We found out last night that Cohen was having bouts of apnea and that there was more blood in her stool. Her heart rate was also decreasing. They did blood work and X-rays.
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We received a call from the NICU at 5 am telling us that Cohen had to be put back on the ventilator. They decided to start antibiotics because they suspected that she had an infection.
Brian and I arrived at the hospital today and spoke with the doctor. Cohen is completely apnic right now, which means the vent is doing all of her breathing for her. She is too tired and feeling too poorly to breathe. Additionally, her X-rays showed that she has a lot of gas in her intestines, but thankfully there has been no perforation at this point. Her bloodwork did show that she has an infection. They are going to be conservative with her treatment and are going to treat her as though she does have Necrotizing Entercolitis (NEC). Luckily, her bowels are not dying right now-- this is what happens with NEC. They will completely stop her feedings and put a PIC line (long term iv) back in for at least 7-10 days. She will be on very strong antibiotics for this timeframe. The doctor feels confident that this will make her feel better.
Last night was my first super rough night since I've been home. This is so scary at times. People have told us that this NICU journey is 3 steps forward, 2 steps back; but man is it hard bring in the throes of it.
Please keep praying for our girl. Pray that she feels good enough to start breathing on her own, again. Pray that her intestines will heal- as she will need those her whole life and pray that our girl can grow big and strong enough to come home, join out family, and love God. We appreciate you all.
Chelce
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Praying for you and your family...Love Beth and Kevin
ReplyDeleteI will continue to pray for you. You and your family have been an inspiration to many. Keep strong in the coming days. Keisha.
ReplyDeleteWe are all praying and lots of friends are praying for your little girl. Hang in there sweetie. We love you And little baby Cohen. Tell that little girl to stay strong and hang in there Chelce. God only gives you what you can handle and you are a very strong and loving mom
ReplyDeleteYou and your family are in my prayers. With much love, Sara
ReplyDeleteI just came across your blog because of Megan at In This Wonderful Life. I will certainly be praying for you and your sweet baby.
ReplyDeleteWhen you pass through the waters, I will be with you; And through the rivers, they shall not overflow you.When you walk through the fire, you shall not be burned, Nor shall the flame scorch you. Isaiah 43:2
Courtney @ Waiting for Bulgaria
www.davisadoptionblog.blogspot.com
I found your blog via Megan at In This Wonderful Life. I will be praying for sweet baby Cohen as well as your family. Such a fighter she is!
ReplyDeleteContinuous prayers for your miracle baby! Hang in there Chelce, hang in there.
ReplyDeleteYou are truly amazing, Chelce. The fact that you have held it together for your family and never lost faith in what our Creator is capable of is really inspiring. We are praying for your little girl, and know that she will make a miraculous recovery. For she was fearfully and wonderfully made. All our love- Leah & Joe Giordano
ReplyDeleteA friend sent me your story and I am in tears. I am so proud of you and your lil girl for all your hardwork on getting her big and strong. My 2nd sons water broke at 22 and 6. I was on strict bed rest in the hospital for 3 months, and had him emergency c-section at 32 weeks. We had a long hard nicu stay(nothing like yours). He is now 20 months old and a perfect , sweet, smart lil boy. He has asthma, and some speech delays, but other than that he is a tuff tiny lil boy! I hope this encourages you, and please know you and your family will be in my prayers. If there is anything more I can do, don't be afraid to ask or email. Naomistorey@gmail.com
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